It is imperative that patients with sickle cell disease who are considering a gene therapy clinical trial fully understand the meaning and limitations of an experimental treatment so they can make an informed decision on whether to participate. Patients need accessible, understandable and actionable educational materials to help them make such decisions.
The Democratizing Education Project welcomes your feedback about the sickle cell disease gene therapy resources. Please email your comments or questions to DemocratizingEd@mail.nih.gov.
These educational materials are for informational purposes only. They are meant to promote your general understanding of gene therapy for sickle cell disease. We encourage you to use these educational materials to talk with your healthcare provider or a clinical trial team.
Sickle Cell Reproductive Health Education Directive (SC RED) advocates for high quality sexual and reproductive health care for individuals living with all types of sickle cell disease
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