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Have you noticed a shift in the atmosphere, a change in the narrative, or an overall new energy and sense of urgency to effect change and address inequities in the sickle cell community? Individuals with sickle cell disease are viable and whole. To honor that wholeness, reproductive health has to be prioritized, normalized, and standardized. Be sure to follow us on social media and check this page for updates.

2023 Higlights

Thanks to Pfizer, two of our very own founders had a unique opportunity to share the stage during this panel discussion aimed to educate medical students from Historically Black Colleges and Universities on the health inequities faced by the sickle cell community and how we can work to ensure more students of color specialize in SCD
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Two of our founders participated in an incredible panel discussion moderated by the one and only Symone Sanders-Townsend during the National Association of Black Journalist 2023 Convention. It was an incredible opportunity to share more about the inequities and disparities around reproductive and maternal health
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FDA sets decision dates for Vertex, CRISPR gene editing drug
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bluebird bio Announces FDA Priority Review of the Biologics License Application for lovotibeglogene autotemcel (lovo-cel) for Patients with Sickle Cell Disease (SCD) 12 years and Older with a History of Vaso-Occlusive Events
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Editas Medicine Announces Positive Initial EDIT-301 Safety and Efficacy Data from the First Four Patients Treated in the RUBY Trial and the First Patient Treated in the EdiTHAL Trial
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Congratulations to Co-founders Dr. Lydia Pecker (Lead author) and Teonna Woolford (co-author) on this groundbreaking publication that highlights the need for fertility services to be incorporated into SCD care)
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Archived Highlights

Archived Highlights

  • Congressional Briefing: Their Lives Depend on Us: Rising to the Challenge of Providing High Quality, Evidence-Based Reproductive Health Care for Women with Sickle Cell Disease
  • 49th Annual National Convention
  • Reproductive Health + Sickle Cell Disease Part 3: Priapism

My Fertility Options

Dr. Kim Smith Whitely, Teonna Woolford, and April Green share their stories and answer many of the questions associated with sickle cell disease treatment and curative options as they impact fertility, to better inform patients of their options. The trio discuss the possible risks and benefits associated with transplant compared to treatment options as well as how the disease impacts fertility.

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Axis Advocacy Podcast

Our CEO sits down with Adrienne Shapiro to discuss SC RED’s mission, year one plans, and excitement for this new era.